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PreemieCare

The mission of PreemieCare is to educate, support and offer additional resources for families of babies born preterm. Specifically for the year 2004/2005, PreemieCare’s focus has been on RSV awareness and prevention. Issues such as breastfeeding preemies, parenting in the NICU, early intervention and much more are also addressed by PreemieCare.

PreemieCare is a relatively new division of MOST (Mothers of Supertwins), Inc. a non-profit parenting organization that provides information, education, support and additional resources for families of multiples.

What's New for Parenting Support Groups with PreemieCare?
www.preemiecare.org/

PreemieCare Spotlight Community Support Groups
We are in the process of gathering stories and articles from support groups on many topics including: dads and preemies, working with insurance companies, and more. If your group has information that you think would be helpful to other families across the globe please submit it to info@mostonline.org and it will be considered for inclusion with our PreemieCare Spotlight!

Are you a volunteer for a community or hospital based parent of preemies support network? Would you like to network with other groups from around the country to support each other as you support families of some very special newborns? click here

What’s New for Parents?

This is My Preemie”- We have come a long way!
We are currently compiling Newborn and Current photos- (once a preemie always a preemie in a mother’s heart) for our photo page.

“I see my trio- all taller than me now- and in a heart beat I can envision our NICU experience.” In a moment, a mother’s heart can be transported back.

That was Then.... This is Now
We ask that you consider sharing your preemie’s (your family’s) story on where you have been and where you are today! Please send your comments to and photos (3 photos maximum per email) to Maureen@MOSTonline.org

Stories from Parents

Click here for our photo page and to share your preemie’s (your family’s) story on where you have been and where you are today!

RSV Stories from parents

Please email us at Maureen@MOSTonline.org to share your story.

On October 18, 2003, one day over my due date, I gave birth to my fourth child, first son, Donald III (Trip). He was 6 lbs. 14 oz. and 20 inches long. Healthy pregnancy, healthy baby. Last March, Trip was five months old. He had a little cold, which is pretty normal in our house. We didn't think much about it until a couple of nights later. He would drink a bottle of formula, start choking, and gasp for air. He couldn't keep the formula down. In the evening he would begin to wheeze....
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My son Bryce was born on November twenty-first, 2000. He completed our family, which consisted of, Alexis 7, Tyler 6, and Emily fifteen mos. His older siblings were in 1st grade and 2nd grade, so any germs they came in contact with, they brought home to the two younger children. Luckily, at that point, I was a stay at home mom. I thought we were in the clear regarding RSV, figuring, that the older children wouldn’t pick up the virus. I was extremely wrong.

My son Tyler was the one who brought the RSV virus home in February. Shortly after his symptoms began, my daughter Emily started to sound congested and began wheezing. I immediately brought both of them to our family doctor. He took a sample of their mucous discharge from their nostrils and tested it for RSV. The test was positive. Tyler was fine within ten days, Emily needed to be on the nebulizer for a very brief period. Bryce at this point was only three months old. He wouldn’t be as lucky as the other children. more >>


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